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June 18th, 2012:

Woman with Alopecia Areata since childhood

Story from a 41-year-old woman with alopecia areata who has difficulty getting comfortable with her hair loss:

Bald patches began at age seven. Cortisone shots directly into the patches worked temporarily. When patches came back around age nine I was treated with: more shots in scalp, Topsyn ointment and also fluorescent light treatments. Eventually all of my hair fell out. By age 15 I was asked to participate in the Minoxidil study. I used it at (what is now considered to be) 100x current market strength. It did not work for me. By age 17 my eyebrows fell out. By age 23 my eyelashes, once lush and long, also fell out. Half of my mons is also bald–the rest is pale blonde and thin. I have transparent hair growth under my armpits and shave it off once every ten days or so. I haven’t shaved my legs since I was thirteen. I am now 41 years old, married, and have two children who do not have this disease. I wear a wig, and every day is hell for me because it is not comfortable. I just want my hair to grow back, once and for all, so I can feel normal again. I have never settled and gotten used to this, but I’ve made the best of it from what I have.

Thank you for sharing your story!